Local computer services wiz Kevin Gregg recently has his new 3-month-old daughter diagnosed with Spinal Muscular Atrophy, the leading cause of infant mortality.
Natalie Renee Gregg, born June 20, to Kevin and wife Ashley is afflicted with the incurable autosomal recessive disease that is caused by a genetic defect. Gregg says his daughter is not suffering currently and is happy and smiling at home.
“This is incredibly difficult to deal with,” said Gregg. “I wouldn’t expect anyone to understand.”
The organization Families of SMA is working to find a cure for the disease, but currently there is a 90 percent chance of death with Type 1 between the ages of 2 weeks to 1-2 years.
“Extra care from the caregivers of the victims of SMA can extend life beyond 6 years,” said Gregg. “Each case is unique and has its own progression. The children are amazing, and it has been shown that they have been proven to be highly intuitive and very intelligent at an infant age. We’ve seen it in Natalie.”
“It’s very depressing, obviously,” said Gregg. “These are very fresh wounds. There are medical devices all over our home. I just have to be strong for my family and help by exhausting every available resource I have.”
A bank account has been set up for the family. Please make any checks out to “The Gregg Fund.” “Anything and everything you do will not only help Natalie, it will help spread SMA awareness,” said Gregg.
The Gregg Fund
c/o The Real Story
P.O. Box 403
There’s an event Gregg wants to help promote in Tuscaloosa, Ala. on Oct 6th: The 10th annual Walk-n-Roll. Infolink below:0